dreamer_easy: (medical)
dreamer_easy ([personal profile] dreamer_easy) wrote2009-12-30 06:39 pm

Thunderstruck

People with Crohn's disease do not have reduced life expectancy.

I know what the hell is wrong with me now, so, yesterday, I bought a book about it. In the past when I've read about IBD it hasn't been at all helpful, just terrifying. Now I can see what applies to me and what doesn't, what's going on in there and what isn't.

When I was 18 I thought I was going to die and I've been waiting for the other shoe to drop ever since. I have told myself for most of my life that I'm never going to reach old age. But the thing is:

People with Crohn's disease do not have reduced life expectancy.

On average. Thanks to modern medical treatments. The illness does predispose you to cancer, but - I have to check with the specialist about this - I think mine is actually in the wrong part of the innertube to have that effect.

Of course, I also have diabetes and depression, either of which could total me. Staying alive and whole is still going to take plenty of work. But:

People with Crohn's disease do not have reduced life expectancy.

*steps outside and is run over by a bus*
uitlander: (Default)

[personal profile] uitlander 2009-12-30 08:42 am (UTC)(link)
Correct. My mother has it, has had it since before I was born, is now 80 and generally viewed as 'indestructible'. She has never had surgical intervention, because they only finally identified what it was about 10 years ago, by which time it was way too far advanced (and she too old) for surgery to be an option.

The down side is that she does live on a cocktail of drugs, which constantly change as the doctors adjust them to try and minimise the side effects. There are other 'lifestyle' modifications, the graphic details of which you would not thank me for - but yes, she's alive, kicking and has a social life.

[identity profile] kateorman.livejournal.com 2009-12-30 08:53 am (UTC)(link)
She's an inspiration!

[identity profile] alryssa.livejournal.com 2009-12-30 09:31 am (UTC)(link)
It's got to be pretty damned mindblowing to have a lifetime self-assertion like that proven wrong.

Just stay away from those danged buses!

[identity profile] pbristow.livejournal.com 2009-12-30 04:38 pm (UTC)(link)
"*steps outside and is run over by a bus*"

Damn! That means I've just missed one. =:o{

Apart from that... Good news! =:o}

[identity profile] lonely-otter.livejournal.com 2009-12-30 04:45 pm (UTC)(link)

*performs dance of joy and congratulatons*

[identity profile] briantheotter.livejournal.com 2009-12-30 11:18 pm (UTC)(link)
*joins in*

[identity profile] scotttheweasel.livejournal.com 2009-12-30 11:19 pm (UTC)(link)
*plays hornpipe*

[identity profile] kateorman.livejournal.com 2009-12-30 11:21 pm (UTC)(link)
Where's Donna Noble when you need her?

[identity profile] qthewetsprocket.livejournal.com 2009-12-30 07:57 pm (UTC)(link)
People with Crohn's disease do not have reduced life expectancy.

*steps outside and is run over by a bus*


This bit made me laugh far more than it should have.

Anyway, I'm thrilled to hear there's good news about your diagnosis, admittedly for not entirely unselfish reasons...speaking as someone who's only had a tenative diagnosis and is still in 'omg what's wrong with my guts why aren't they working???' mode, I'm hopeful that there's yet a firm 'this is what it is, and this is what we do about it' in my future. :)

Do share if you get any good coping/dietary tips, yeah?

[identity profile] kateorman.livejournal.com 2009-12-30 11:13 pm (UTC)(link)
*slaps forehead* Qz0r, I didn't even think of that. You are, of course, where I was. My specialist says that's very, very common, and very, very frustrating, because there are so many subtle things that can go wrong with the innertube and they're just bloody hard to work out. You'll get there. Keep demanding answers. (Let's do an "organ recital" in email and discuss horrible symptoms!)

I'm on Immodium for the urgency and Colofac for the cramping. Both of them are working very well, with only the odd conniption.

I have a no fly list of foods I really oughtn't eat - I'm going to have to experiment a bit and see if they're still a problem. (Red capsicum, dried apple, TVP... omg I'm not brave enough to try oyster mushrooms ever again.)

[identity profile] outsdr.livejournal.com 2009-12-30 09:30 pm (UTC)(link)
I wonder how much your depression compounded/was compounded by the idea that you had a death sentence hanging over your head. What a vicious cycle!

[identity profile] kateorman.livejournal.com 2009-12-30 11:04 pm (UTC)(link)
Self-inflicted injury, to some extent. I think there's something almost bratty about it. "Hmph. I'll die then. That'll show you."

[identity profile] murasaki-1966.livejournal.com 2009-12-30 09:38 pm (UTC)(link)
I'm glad to hear this, as I'm soure Jon is as well. Now you have no excuses for not finishing your novel.

[identity profile] kateorman.livejournal.com 2009-12-30 11:13 pm (UTC)(link)
*whines* But the cytokines released by the inflammation cause fatigue...

[identity profile] murasaki-1966.livejournal.com 2009-12-30 11:18 pm (UTC)(link)
Proust wrote In Search of Lost Time in bed....

Did you get the message about New Year's at our place?

[identity profile] kateorman.livejournal.com 2009-12-30 11:19 pm (UTC)(link)
Oh *)&%)*(^ I am so disorganised. (Right now I am searching through piles of paper for a prescription!) We cannot make it alas but are very grateful for the invite. :x

[identity profile] murasaki-1966.livejournal.com 2009-12-31 02:27 am (UTC)(link)
No worries. Have a good time tonight at Andrew and Von's and give them our love. Come an have dinner at our place one night in the new year. I know how to cook for coeliacs.

[identity profile] kateorman.livejournal.com 2009-12-31 02:03 am (UTC)(link)
As long as I survive long enough to see the Tenth Doctor's regeneration, I shall be content. :D